Sobota, 21. Říjen 2017, <span class="translation_missing" title="translation missing: cs.countries_names.en">En</span>, Rett syndrome poker run

Od 21. Říjen 2017 - 11:00 Do 18:00
34 Lidé , kteří se účastní
Popis události
Rett syndrome is a rare non-inherited genetic postnatal neurological disorder that occurs almost exclusively in girls and leads to severe impairments, affecting nearly every aspect of the child’s life: their ability to speak, walk, eat, and even breathe easily. The hallmark of Rett syndrome is near constant repetitive hand movements while awake. Cognitive assessment in children with Rett syndrome is complicated, but we know that they understand far more than they can communicate to us, evidenced by their bright and attentive eyes, and their ability to express a wide spectrum of moods and emotions.

All proceeds from this run go to a research trust to find a cure.
Registration 11am
Bikes and cages out at 12pm
Bikes and cages in at Grady's 6pm
20$ a rider.
10$ passengers and extra hands.
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